Thursday, December 18, 2008
A long overdue update
The biopsy results came in today, and, in the exact words of the doctor, "It was better than I expected". Whooooo hooooo! His kidneys are only 25% scarred, the disease is still membranous nephropathy and the nephrologist thinks that with proper management of his blood pressure, his function will go back to near normal. If not, we 'know' this disease and will probably use the same treatment protocol as 15 years ago - cytoxan (an oral chemotherapy drug) and prednisone (a corticosteroid). It sounds scarier than it is, as Stan's only side effects were moodiness! I'll take that, considering the nephrologist was thinking kidney transplant within 2 years before the biopsy! Now it looks like we'll have LOTS of time before that!!!
I have another patient to report on, Hannah. She had her last appointment with the eye surgeon. Her eye has healed nicely and the lens is exactly where it should be! Our next step is to go to a pediatric opthamologist and get her fitted with glasses (her vision is 20/200 right now). It's another miracle in our lives.
Thank you to all those who prayed, brought dinners or just sat with me!! This came out of nowhere and really derailed me for a little bit. Hopefully, 2008 is behind us and 2009 will be hospital free for the Markuns (unless I get a boob job!!)
Monday, December 1, 2008
More 'excitement'
Never a dull moment here...
Sunday, November 23, 2008
Busy, busy, busy
Then, I had bunco! Hooray for bunco!
Saturday morning I took my car to be looked at ( it's making a really weird noise ). No one can figure out how to fix the noise, but I needed a new serpentine belt. Aack!
Next, on to my house to pick up the girls and to high tail it to Sam's to pick up my nephew's birthday cake. Then, onto Ransom's 4th birthday. Unfortunately the girls had a birthday party to go to at 4, so we only stayed for a bit, then I took them to the party and I came back to the party. After Ransom's party, I picked the girls up from their party. And that was Saturday!
Sunday was church, Generations of Faith, book reports, Wal Mart any getting Stan's van tuned up and my serpentine belt on.
I'm tired!
Saturday, November 15, 2008
Surgery is over
Hannah before the fight to drink her medicine
The surgery took much longer than expected, almost an hour longer. We're still not really sure why. The good news is that they were able to get the lens in her eye without using stitches (which apparently is a big deal). She only has one stitch which is where they made the incision to put the lens in. That stitch may never have to be removed, so we may be done with all this anesthesia stuff for good!
The bad news about Hannah having to get the injection is that it took MUCH longer for her to come out of anesthesia. We were allowed back into the recovery room at 2:30, and she didn't really wake up until 4:30. The good news about the injection is that the added medication meant that she woke up very peacefully. No thrashing, screaming or fighting. Just some irritation that she had the pulse ox, EKG leads, IV and shield and gauze on her eye. She had some apple juice, a Popsicle and graham crackers and we were on the way home.
It took us 2 hours to get home...nothing like rush hour traffic on a Friday :-(
Once we got home we had some Panera, went to bed, and got up at 6:30 to go downtown to get the gauze removed and have her eye checked.
Hannah in great spirits on the way to have the shield and gauze taken off
The doctor said all looks well, she has 90% vision in that eye. She has some astigmatism which will most likely have to be corrected with glasses. No biggie.
Now on to fight the insurance company!
Friday, November 14, 2008
Everything seems worse at 2am
I just want the surgery to be over with and to have us all snug in our beds again.
Wednesday, November 12, 2008
2 more days??
Monday morning I woke up with a 'don't get on the plane' feeling about the surgery that stuck with me all day. Now I know why. Tuesday morning greeted me with a phone call from UIC stating that Cigna had denied coverage for the surgery. A billion phone calls and one super secret authorization code later, I thought all was fine. Nope. This morning, another call from UIC. The authorization will not cover anything but doctors visits, therefore the hospital and the surgery in it are not covered. We were specifically told, when we applied for the Continuance of Care, that ANYTHING the doctor authorized would be covered, including surgery. So, a barrage of phone calls has been made, Stan has called his HR people and I wait. I wait with eyes swollen from crying and a stomach full of knots wondering if this is going to be covered. Wondering if we're gonna bite the bullet and pay the out of network costs, or tell an 8 year old who just wants to see normally again that she has to wait.
I hate insurance.
Friday, November 7, 2008
Countdown to surgery
Then I have to stop myself and remind myself how blessed and truly lucky I am. I have three beautiful, healthy (except for that eye thing!) children that were brought into this world against all odds. Even when they made it to being born, the odds were still about 10% that they wouldn't survive and 30% that there would be something 'wrong' with them. All three of them beat those odds.
I am blessed, too, that I have such a wonderful group of friends who rallied around me when Hannah got hurt. They will never know how deeply touched and awed I still am by all they did for me. I am a giver, and it is almost impossible for me to take. They knew this, and they made me take anyway.
Yep, life isn't fair. Things happen. I guess I am slowly learning that things can happen for no reason at all and it's what you do with the results of that happening that count. Right now I'm counting my blessings and counting down the days until another chapter in this story is finished.
Tuesday, November 4, 2008
Book Reports
Sunday, November 2, 2008
Halloween 2008
Thursday, October 30, 2008
I must have a sign on me
As I was leaving the house this morning, the phone rang. I didn't answer it, but checked my messages on the way to work. The message was from the eye clinic at UIC. They were calling to remind me that I had an appointment tomorrow to fill out paperwork for Hannah's surgery on the 14th, oh, and Cigna is not contracted with us anymore and when we called them they said you would have out of network benefits which means you'll be entered into our system as a self-pay. Pardon me? I called back to UIC and explained that I had filed a Continuance of Care form and had gotten the approval for in-network coverage through Jan 1. She said they had no record of that and when they called Cigna they were told there was no record of that either. Now I have the letter giving me approval. I know right where it is. I call Cigna, with guns drawn. When I finally get a person, they check it and, yep, there it is. I ask her to call UIC, of course she can't do that. I call UIC back, explain that I am just calling to follow up and if they call Cigna they'll get all the approval information they need. She proceeds to look it up and says, "I don't know what the problem is, the letter is right here and HAS BEEN FOR A MONTH." So she's changing the billing back to in-network and my heart rate is slowly returning to normal.
Don't these people understand that when they call and deliver a mistake like this it literally puts people into hysterics???
Wednesday, October 29, 2008
Gonna blog more....
Today I am fascinated by a continuing issue in our house. Every single morning my children (and I call them that because they are mine, can't deny it) are SHOCKED, SHOCKED I tell you, to realize they have to do the following:
1. Get dressed
2. Eat breakfast
3. Pack a lunch
4. Put their shoes on
5. Brush their hair
6. Brush their teeth
7. Put their coats on
Every day is like a surprise party here. I think I will start saying things like, "Girls, get dressed. SURPRISE!!" "Eat breakfast -- SURPRISE!!"
It must be nice to have every day be a new, exiting adventure with all kinds of intriguing tasks. Unfortunately for me, every day is like the movie Groundhog Day.
p.s. Here are pictures of Emma in her new glasses (or being arrested)
Tuesday, October 28, 2008
Why I dislike Halloween
For me, Halloween signals the end. The end of any real 'free' time I have. There are, from now until after New Years, approximately one kajillion things that need to be done, parties to attend, gifts to buy and wrap. It seems that Halloween, with it's necessary costumes and candy purchases, signals that end for me. And there isn't a thing I can do about it (unless I go on a caramel making strike this year, which I don't think would go over well with all those I have gifted (read addicted) over the years). Sigh.
Wednesday, October 22, 2008
Guys don't make passes...
p.s. A big thanks to Kelly for pointing me to these cool new backgrounds! Let me know what you think of this one!
Monday, October 20, 2008
Ever have one of those days?
OK...in the grand scheme of things today wasn't that bad, but it was one of those days where everything just kept piling up...
First of all, 2 out of the three girls could not find their gym shoes. Of course it is PE day and it is the end of the world if they don't have their shoes. Where the shoes go, I do not know. We ended up having to make do with older shoes...of course the minute they got home they were able to find their shoes. Uugh. As 'punishment' they had to clean out the bench where the shoes are supposed to be stored of all shoes EXCEPT those that they now wear.
Then I got off work early, which was great! However, I decided to stop to get my favorite candy...Runts. Unfortunately I stopped at three stores and could find NONE. NONE!! BIG EMPTY SPOTS WHERE THEY SHOULD BE.
I was forced to order them from Amazon.com in bulk.
My name is Laura M. and I am an addict.
Oh, and then did I mention that it rained? Sure, rain, no biggie. Except that I have to pick the girls up from school and we have a substantial walk to the car. And it didn't start pouring rain until 3:28....and the girls get out at 3:29.
Welcome to my little world of tragedies....none horrible, but annoying nonetheless.
Wednesday, October 8, 2008
WE HAVE A SURGERY DATE!!
Friday, October 3, 2008
Picture day - yikes!
there are 864 possible choices for your personalized portrait package! That includes adding on extra photos or getting names added to your wallet sized pictures. (Kelly, you may have to check my math!) It took me a good 1/2 hour to decide what package...colored background (which is $4 more) or grey, how many 8x10s? 5x7s? 3 class pictures or just one? Pay for the super deluxe package to get the CD? Get retouching? Oh my God! The INSANITY! In the end, I decided on one of the lower end packages that had my 'requirements' - 1 8x10 for their school book, 2 5x7s for the grandparents and a class picture. Total damages....$108. The good news...the picture companies have entered the year 1990 - you can pay online rather than sending in a check in that funky envelope that never seals properly.
Tuesday, September 23, 2008
THIS is why I have headaches!!
Sunday, September 21, 2008
More surgery...
So, once again, we'll be off early Friday morning and home that afternoon. Hopefully this will be the last of the surgeries.
Monday, September 8, 2008
One of the best things about triplet 8 year olds is...
Friday, September 5, 2008
Happy birthday to me, I'm a hundred and three...
1. Grey hair -- it's coming in at an alarming pace. Thank goodness for haircolor!
2. Aches and pains -- I still haven't recovered from our trip to Great America. There is a spot in my back that may never be the same!
3. I have three children!! Three EIGHT year olds -- where did the time go??
I can't believe I'm a full fledged adult, let alone a 38 year old. Is this what they call a mid-life crisis??
Sunday, August 24, 2008
First Day of School!
Here's a traditional first day of school shot!
As you can see, Hannah is still wearing her sunglasses and probably will for a while. We had an exam under anesthesia the Friday before school started and was able to be measured for a contact lens. The contact lens specialist was wonderful...he is a pediatric specialist and was very, very knowledgeable, not only about the eye element, but the psychology of injured children, too. We are taking it slowly and hopefully she will be fitted for a lens in the next week or so. This should help with her sensitivity to light as well as give her eye the ability to focus.
I am back at work 4 days a week, and loving it!! :-D
Tuesday, August 12, 2008
More Hannah news
On the fun side, we all went to Great America and had a blast. Stan, Sarah and Emma rode all the roller coasters! Hannah and I preferred the more sedate rides, but still had lots of fun!
School starts the 21st - I know I can't wait!
Monday, July 21, 2008
Another Hannah update...and iPhone news!
Results - all stitches are out, we 'graduated' from the trauma surgeon and are moving on to the lens doctor. We will also be going to the pediatric ophthalmologist to have her vision evaluated soon...we know she can see, we just don't know what the 'measurements' of the distortion are yet.
I have been thinking a lot about this injury. I am hopeful that things will be as close to normal as school approaches (and it's on it's way soon). I hate that my little girl has become so introverted and shy...mostly because the light irritates her eyes. I miss her being happy and carefree.
Now, for something completely different, after much careful research and whining on my part, Stan let me order the new iPhone 3G. When it became apparent that I was going to lust after every iPhone I saw, and that he could get away with an anniversary/birthday gift all in one, AND our cell phone bill would only go up $5 a month, he relented. I have been waiting with baited breath for it to ship since last Sunday, and, this morning, it has shipped and should be at the store tomorrow after 3pm! I can't wait!
Thursday, July 10, 2008
Hannah update and Vacation
Today Hannah had another check up. We're going to have another eye exam under anesthesia next Friday and hopefully get the last of the stitches out. She is also now patch/shield free, much to her dismay. It's going to be a big adjustment for her. I also asked that she be given something before her exam to settle her down so we don't have a repeat of the hysteria from last time. Hopefully that will help.
Now for the fun stuff...we spent 2 weeks in Syracuse, IN at my mother's cousin's house on the lake. It was a blast.
The girls favorite part was the beach...and the playground there...
Emma and Hannah loved the Amish bonnets I bought them in Shipshewana...
And my FAVORITE part was going here:
as seen on Food Network's Diners, Drive-Ins and Dives
I had the Philly Chili - super yummy!
We had so much fun...even Great-Grandma played Nintendo Ds!!
Thursday, July 3, 2008
Friday, June 20, 2008
Today's exam
The GOOD portion of the day -- her eye continues to look wonderful. Today they took out 6 of the 9 stitches (which means we're going to have at least one more of these!). The trauma surgeon said that he could have taken all 9 out, but they like to leave a few in a bit longer to establish that it is truly healed and that they haven't missed anything. Her retina looks good, as it has since the accident. The capsule where her lens was removed is still well formed and complete, meaning that when she is older they'll be able to slip in a lens with no stitches. That is a really big deal. Here's a neat fact...most of us wear sunglasses to protect our eyes from UV rays...Hannah's artificial lens will have the UV protection built in!
Thanks for all your prayers!
Wednesday, June 11, 2008
A great appointment!
Today's appointment was great. Hannah's eye looks great, no sign of infection or opening of the wound and she is still able to see, and could even see farther this time.
We got the green light for swimming and spent the rest of the day at the pool! Hannah swam like a fish! It was awesome to see her acting like her old self. I was starting to get worried about her...she'd been pretty depressed and sleepy...I'm glad the 'happy Hannah' is coming back!
We go back on the 20th for an eye exam under anesthesia. They contemplated trying to get a good exam while she was awake, but based on the trouble we've had just getting cursory exams in the office, I felt that anesthesia would be our best bet. I wanted to be sure that they get a complete look at all that's going on in the eye, as well as give the trauma surgeon who stitched her eye a chance to see if the stitches are close to removal stage.
So, things here are good, and getting better. We're looking forward to spending lots of time at the pool now!
Wednesday, June 4, 2008
A huge miracle!!
We also got lots and lots of good news regarding summer! The doctor sees no reason why Hannah can't swim (yeah!) after next week's appointment and also gave us the green light for our vacation at the end of June and Great America later in summer! The best appointment yet!!
So, thank everyone for their prayers - they certainly worked!! Better than I ever expected they would! I ask that you all keep some very special people in your prayers...there is a little girl in Hannah's class that is having tonsil/adenoid surgery soon, a little boy in my triplet group with leukemia, a little girl in my triplet group that is also having tonsil/adenoid surgery, mom in my triplet group who's husband is gravely ill, and my college roommate's husband who was in a bad car accident and is now blind and in rehab for lots of orthopedic issues. If your prayers did wonders for us, imagine how much more you can all do!
p.s. a special thanks again to all my bunco ladies and triplet moms...you have no idea how much you have touched me and I hope that someday I will be able to give back!
Saturday, May 31, 2008
A long day, and a small miracle
Hannah was a little agitated during the check (can't say that I blame her) but all looks good for now. No signs of infection and the retina is still staying right where it should be. All good news.
Now for the small miracle...which, to me, is a huge miracle.
Some of you know that Hannah has a 'baby' - which is one of those lovey blankets that has a bear head and a pink blanket for a body. She's had it ever since she was born, and it has been her constant companion. Well, we lost Baby (Hannah has named it Baby). We looked everywhere at home, I called everywhere we went after her last doctor's appointment, every store, EVERYWHERE! No luck. I was sick at the thought of having to send her into surgery without it, but we did and she held up fine.
Now for the miracle...today we went to Cracker Barrel after her appointment (it's her favorite thing to do after her appointment and has become routine). I called Cracker Barrel twice after Baby went missing and Stan called there once, each time we were told she wasn't there. Today I had Stan take the 'replacement' Baby (which is a lamb) and ask at the front desk if anyone had turned Baby in. Lo and behold, Baby was there. I am sure that the entire restaurant thinks that I am out of my mind. I was sobbing. I am so glad that Hannah has her Baby back. It meant so much to me and I was sick that it was gone. I really felt that I had let her down. Now Hannah is resting comfortably with Baby on the couch, a worker at Cracker Barrel is probably contemplating some sort of lawsuit against me because I hugged her and cried so much, and all is right with the world. For now, at least.
Friday, May 30, 2008
It's over...and we're pooped!
We're all very tired from our early morning Chicago excursion, and have to return tomorrow at 8am! Don't doctors ever sleep???
A giant thank you to my bunco moms who are taking care of dinners this weekend! I couldn't do this without you!
Today is the big day
Thursday, May 29, 2008
A little something to get me to tomorrow...
Tuesday, May 27, 2008
Anxiety is setting in
Monday, May 19, 2008
Good news / bad news
Back to school
Saturday, May 17, 2008
One day at a time...
Hannah had a difficult time this morning since her sisters went to the park...I took her with but she soon realized that sitting off to the side doing nothing wasn't fun, and the tears began. We're working on our homework now, since the house is nice and quiet.
I want to thank again everyone who has called, e-mailed, brought dinners, sent flowers and a really cool fruit arrangement, and a special thank you to the bunco moms who had a masseuse waiting for me at bunco last night!
Also, my college roommate's husband is out of ICU and has actually been able to be wheeled around! Way to go, Steve!
Lastly, I wanted to share this prayer that one of my 'triplet mom friends in cyberspace' sent me:
Prayer to St. Lucy
Relying on Your goodness, O God, we humbly ask You, through the
intercession of Saint Lucy, Virgin and Martyr, to give perfect
vision to our eyes, that they may serve for Your greater honor and
glory.
Saint Lucy, hear our prayers and obtain our petitions.
Amen
Friday, May 16, 2008
Update from today's visit
The best news...Hannah gets to go back to school! She can't go to PE or outdoor recess, and has to wear her eye shield and sunglasses, but she gets to go back to school! She is going to have a half day on Monday, because of the eye doctor appointment, but she gets to go back to school!
Can you tell I'm a bit excited to have some normalcy back??
Countdown to follow up appointment
Wednesday, May 14, 2008
Another non-eventful day
I am very grateful to all who have helped out...it is all so appreciated. I am worn down but trying to keep a good face for the kids...sometime I'll be able to collapse, but it won't be for a while! So for now I just keep swimming and trying to keep my head above water. Thanks for all the good thoughts and prayers.
Non-update
Other than Hannah's eye, we did have some 'eventfulness' - we went and got new tires for the car, had lunch with grandma and grandpa and picked out new DS games for her sisters.
Once again, a giant thank you to everyone for all of your kindnesses. I am overwhelmed. A special thank you to Anne from bunco for dinner and all the special treats for the girls, Reza for the yummy desserts, Heather from church for the wine, balloons and bears for the girls and for bringing dinner, Carolyn for keeping 'taco Tuesday' and bringing tacos for dinner last night, Deanna and Jeff for the beautiful flowers and teddy bear, and Sandra and Tracy for meeting me at the library and listening to me babble. If I have forgotten anyone, I am sorry! All of these things are making it a bit easier to get through this. I just keep remembering that it could be so much worse.
On a side note, please keep my college roommate's husband in your prayers...he had a terrible car accident over a week ago and is just now off the ventilator. Pray that he has as uneventful a recovery as Hannah has been having.
Once again, I am overwhelmed by your caring, generosity and love.
Monday, May 12, 2008
Scary, scary, scary
For those of you who don’t know, Hannah injured her eye on scissors on Sunday. She had a 2 ½ hour surgery that day. We were transferred from Edward Hospital to UIC for the surgery and the ambulance driver was my best friend growing up's brother! We went back to the eye clinic at U of I Chicago and so far all is well. They checked to see that the wound is stitched tightly and that there is no more leakage from the globe of the eye. They also did an ultrasound of her retina and all is well there, too. So, for now, we wait. Hopefully her eye will heal well enough that she will have better sight than she has now, for now she can see just shadows and movement. She has to be out of school for a week (to keep the eye from being jostled as well as keep infection far away) and we have a follow up appointment downtown on Friday. I’ll be staying home with her all week.
It has just hit her this evening that this is going to be a long time and that her eye might not ever be the same. It’s heartbreaking to see your child hurting so much. I am trying so hard to keep this in perspective – at the end of the day, I have a little girl who will be just fine. Eyesight isn’t that important, and she still has 100% sight in her other eye.
A big thank you to Jeanne, who has been keeping you all updated. It’s hard for me to write because writing it down makes it so much more real to me.
Another big thank you to my church bunco group, who are bringing meals this week. All of your calls and concern and prayers are so appreciated.
Please keep the whole family in your prayers – I have one little girl who is scared she won’t see and two other girls who are feeling a bit neglected. This triplet thing is HARD!!
Monday, April 28, 2008
The Eighth Birthday
Birthday number 8!
The eighth birthday weekend has been a blur! We had a billion things to do. The girls had their very first sleepover birthday party at their friend, Lainie's on Friday night. Then on Saturday, they had their 'kid' party at Aunt Nina's Sweets and Treats. An awesome party! Then Saturday night, we had our family party. Sunday was Church, First Communion Class, and trying to get to play with all our new toys!
Hannah, Sarah and Emma making their own cotton candy!
The cupcakes!
The birthday girls!
Making pucker powder sticks, choosing candy for decorating cookie pizzas, decorating cookie pizzas
Singing 'Happy Birthday'
Monday, April 21, 2008
Pieces of Eight
I will never forget the day they were born...it was one of the best/worst of my life. Best because after so many years of heartbreak and trying I was finally a mommy! Worst because my health was in serious jeopardy and so was theirs for a while. Thank God things all turned out fine. I am truly blessed.
So, yesterday we had a special dinner and they got their Nintendo DSs a day early (so they could spend a whole day playing with them). Tonight is Culvers fundraiser night at their school, so we will be going there and (gasp!) their teacher will be there on their birthday!!!
Then cupcakes to dance class on Tuesday and a lull until 2 parties on Saturday.
Happy Birthday, Hannah, Sarah and Emma! I love you so much!
Sunday, April 13, 2008
My attempt at being Acette of Cakes
Tuesday, April 8, 2008
Just keep swimming...
The next month is going to be a blur...the girls' birthday is coming up faster than you can say "Hairspray!" and we have both a kids party and a family party planned. Then on May 10th, they have their First Communion, which opens up another can of worms. Dresses have been ordered for weeks, and are on backorder. After much stalking, I finally got notice that they shipped this morning! Whoo hoo! Now, just to plan a party! Thank goodness for my girlfriend Karen's boyfriend, Mike! He works at Vienna Beef and has become my beef connection for all of my entertaining needs :-D
Just to illustrate my OCDness, here are pictures of the girls' invitations...
The family invitation (yet to be mailed!):
The class invitation (I printed it on hot pink cardstock and cut it out in the shape of the can:
The envelope for the class invite:
I have yet to start the First Communion invites, but I think they'll be a lot easier!